Print this pageNSW Clinical Cancer Registry
The NSW Clinical Cancer Registry compiles data on the incidence, mortality, survival and care of cancer in NSW.
| QUESTION: |
| What is the NSW Clinical Cancer Registry Program? |
| ANSWER: |
Accurate clinical information is needed to ensure best practice is being delivered to cancer patients. Currently, information on stage, treatment and intermediate outcomes by facility or Area Health Service is not available at a statewide level. Important intermediate outcomes include treatment given, relapse, side effects and quality of life. High quality cancer services need to monitor and benchmark the appropriateness and effectiveness of care using Clinical Cancer Registries, based on a clinical cancer minimum data set collected for all courses of primary treatment and palliation. The Cancer Institute NSW has implemented five Area-based Clinical Cancer Registries to collect the national clinical cancer core minimum data set. These Registries provide detailed information on service volumes and trends, access, quality of care and key cancer outcomes linked to treatment sites and modalities. The Clinical Cancer Registry facilitates the monitoring and review of patterns and quality of care for cancer in NSW. NSW Clinical Cancer Registry Project Governance Structure The Chair of the Clinical Cancer Registry Steering Committee is Professor Geoff Delaney, Director of Radiation Oncology (Western Zone), Sydney South West Area Health Service. |
| QUESTION: |
| What data is collected in a Clinical Cancer Registry? |
| ANSWER: |
The dataset is a revision of the dataset developed by NSW Health and the Standing Committee of Directors of cancer Departments and Services in NSW in 2000 ( Public Health Division. NSW Clinical Cancer Data Collection for Outcomes and Quality .Version 1. Sydney: NSW Health Department, 2001), and aligns with the national standard cancer (clinical) dataset specification (Health Data Standards Committee 2004. Data Set Specification, Cancer (clinical), National Health Data Dictionary Version 12, Supplement. AIHW Cat. No. HWI 71. Canberra: Australian Institute of Health and Welfare). Some disease-specific items have been withheld in this phase of the pilot. A draft data dictionary is available for comment: NSW Clinical Cancer Registration: Minimum Data Set Version 1.9 |
| QUESTION: |
| What is clinical cancer registration information used for? |
| ANSWER: |
Broadly, the Clinical Cancer Registry provides Area Health Services with detailed and timely information on service volumes and trends, access, quality of care and key cancer outcomes linked to treatment sites and modalities. The Clinical Cancer Registry also supports monitoring and review of patterns and quality of care for cancer. |
| QUESTION: |
| Which Areas are participating in the NSW pilot program? |
| ANSWER: |
Six Area Health Services have been contracted by the Cancer Institute to pilot cancer registration:
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| QUESTION: |
| Who are the Cancer Information Program Managers? |
| ANSWER: |
The Area-based Registries are the responsibility of the Cancer Information Program Managers, who report directly to the Directors of Cancer Services. The Program Managers also oversee the engagement and supervision of Cancer Information Managers, who are responsible for the collection in the Area Registries. Hunter and New England Area Health Service North Coast Area Health Service Northern Sydney and Central Coast Area Health Service South Eastern Sydney and Illawarra Area Health Service Sydney South West area Health Service Sydney West Area Health Service |
| QUESTION: |
| Where can I find more information? |
| ANSWER: |
Cancer Information Systems Manager: Clinical Cancer Registry Program Coordinator Cancer Services Reporting Manager |
