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NSW & ACT Hereditary Cancer Registry

The Hereditary Cancer Registry (HCR) was established to provide information and support to people affected by hereditary cancer, their family members who may be at-risk, and their doctors in NSW and the ACT

While there are a number of hereditary related cancers, the conditions focussed on by the HCR include:

What does the Hereditary Cancer Registry do?

  • The HCR aims to assist people from families with a high risk of hereditary cancer to understand and manage their risk. It does this by:
  • Building a complete picture of the condition in a family, assisting doctors to assess risks and plan screening and treatment.
  • Developing knowledge about the incidence of hereditary cancer conditions in NSW and ACT
  • Contributing to better information, services and support for patients and their families. For our latest newsletter, please click here. PDF document. Adobe Acrobat required.

Why should I register and how do I register?

  • People from high-risk families are encouraged to register with the HCR to take advantage of our information, screening expertise and other services.
  • Registration is voluntary, and personal information is held confidentially under the Health Information and Records Privacy Act.
  • Registration can be completed using the registration form provided by your doctor or genetic counsellor or contact the HCR for more information.
  • Download the HCR Registration Form PDF document. Adobe Acrobat required.(for health professionals only).

More Information

For more information on Cancer Genetics and hereditary cancer, please visit CI-SCaT and click on the patients & carers tab.

Contact the Hereditary Cancer Registry

To contact the HCR call Toll free on 1800 505 644 or email hcr@cancerinstitute.org.au or write to us as at:

NSW & ACT Hereditary Cancer Registry
c/o Cancer Institute NSW
Locked Mail Bag 9014
Alexandria NSW 1435


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