Print this pageInformation for Patients, Carers and Families
Finding out you have cancer changes everything. Lives are often turned upside down with many people feeling frightened and sad at the same time. Thankfully, advances in the early detection and treatment of cancer means more and more people are living with cancer than ever before. That's why making sure everyone has the best supportive care and information means looking after the person as well as the illness.
NSWOG Neuro-Oncology Factsheets
Follow the links to a comprehensive suite of resources for brain tumour patients and their families and carers. The resources include factsheets on everything from Anger Management to Memory loss and give detailed descriptions, real-life case studies, key facts and strategies. The factsheets were developed by the Cancer Institute NSW NSWOG Neuro-Oncology.
Overview
Managing changes to thinking and behaviour after diagnosis of a brain tumour: A series of fact sheets and information resources for patients and their carers. Click here to view the overview. 
For more information or a hardcopy of these resources, please contact Kylie Wright on KylieM.Wright@sswahs.nsw.gov.au or teresa.simpson@sswahs.nsw.gov.au.
Factsheets
- Anger: Are you having trouble with your temper
- Stress & Anxiety: Are you feeling tense, nervous or overwhelmed?
- Attention and Concentration: Are you having difficulty staying on task
- Communication: Can’t find the word or talk too much?
- Disorientation/Appearing Confused: Feeling lost, not knowing where you are…?
- Being Self-Centred (Egocentricity): Do you only think about yourself and find it hard to see other people’s point of view…?
- High Level Thinking or Executive Impairments: Can’t seem to think straight…?
- Fatigue: Do you feel exhausted or tired a lot of the time…?
- Impulsivity: Do you sometimes act without thinking…?
- Inappropriate social behaviour/ inappropriate sexual behaviour: Can’t seem to say or do the right thing at the right time…?
- Lability: Do you feel that you are on an emotional roller coaster…?
- Apathy/Lack of motivation: Can’t seem to get yourself going…? Don’t seem to care about anything…?
- Neglecting Personal Care / Looking after yourself: When how you look no longer seems to be important…
- Memory: Do you keep forgetting things… ?
- Low Mood - Depression: Do you feel sad, tearful, can’t seem to enjoy yourself…?
- Perservation: Do you repeat yourself or get stuck like a broken record…
Resource Sheets
- Anger Management
- Checklist for getting ready
- Goal Setting
- How to Cope with Depression
- Activity Scheduling
- Memory Tips
- Mindfulness exercise
- Problem solving
- Stress Management and relaxation techniques
- Stress Management
- Timetable
Activities
Brain Tumour Support and Education Forum - 28 October 2008
