PRMs data and analytics
What data is currently collected?
The PRMs system contains data collected from two sources:
- The Oncology Information System within the Cancer centre — This includes patient demographic (patient name, patient identifiers, date of birth and Aboriginality), and appointment data (date, time and location)
- The patient by completing the PRMs survey — this includes email address, mobile number and answers to the wellbeing measures.
The PRMS sytem currently has two PRMs measures available:
- Level of distress
- Practical problems (child care, housing, insurance/finance, transportation, work/school, treatment decisions)
- Family (dealing with children, partner, ability to have children, family health issues)
- Emotional problems (depression, fears, nervousness, sadness, worry, loss of interest in usual activities)
- Spiritual/religious or other concerns
- Physical problems (appearance, bathing/dressing, breathing, changes in urination, constipation, diarrhea, eating, fatigue, feeling swollen, fevers, getting around, indigestion, memory/concentration, mouth sores, nausea, nose dry/congested, pain, sexual, skin dry/itchy, sleep, substance abuse, or tingling in hands/feet).
- Pain
- Tiredness
- Nausea
- Depression
- Anxiety
- Drowsiness
- Appetite
- Feeling of wellbeing
- Shortness of breath
Additional data can also be collected via the survey application, depending on survey type and site configuration.
Data access and use
Authorised Cancer Institute NSW staff can access the data for support and maintenance of the system.
Healthcare providers can access survey response data within their Oncology Information System. The patient’s survey data is sent directly back in to the oncology information system where each cancer centre can extract it and develop their own analysis and follow their own approval processes.
Data framework
To date, the Institute has focused primarily on the development, implementation and uptake of the PRMs system into NSW cancer services. However as we approach completion of implementation, our focus will transition to using PRMs data for service delivery, service planning and quality improvement to understand the patients experience of their care.
If you would like more information on the Patient Reported Measures Program, please email us at cinsw-prms@health.nsw.gov.au.
